News

Rorys wish to walk

Hero knocks on his door


Rory and his superhero and his Mum Shauna (Source: Shauna Gallagher)
Rory having some quality time with carl
(Source: Shauna Gallagher)
USPA NEWS - Never cried as much as I did when Carl Frampton showed up at my front door
Rory is Carl's biggest fan !! Carl is his superhero !!!
Carl is our ambassador for little Rory's Wish to Walk,Carl took time out of his Easter Sunday to deliver an Easter egg to his friend Rory Carl and his family
Fun day for all
Source: Shauna Gallagher
Surprised 4 year old by knocking on his door Shauna tells what took place, Rory Gallagher is four years old , he has cerebral palsy and just one wish to Walk. Rory is from sligo Ireland, he is a boxing enthusiast, a born fighter Rory is just home from a neurological rehabilitation center in Paterna Spain , where he is making great progress !! He is getting much stronger and building up his strength, I am delighted to say he is no longer in nappies, he has proven the HSE wrong. He is big boy now in big boy pants. He worked hard very day & never gave up, I am so proud of him !! This afternoon Carl Frampton 2 weight world champion boxer along with his wife Christine , and two kiddies Carla and Rossa came to our home to visit wee Rory & welcome him home. Rory was absolutely delighted , such great excitement - He is Carls biggest fan. They came with a massive amount of Easter Treats for little Rory & had him completely spoilt Rory was in awe as he saw him coming through the kitchen door, it was the most precious moment , I was so overwhelmed and couldn't help but cry. To think that Carl would drive up from Belfast to surprise my wee Rory, its unimaginable. Rory meet Carl last November in Belfast where Rory was treated like a little VIP at the Homecoming Belfast fight night and has been keeping in touch over the phone & through twitter but for him to come up to visit Rory was so special. Rory had the best day ever and enjoyed messing about with Carl, Eating Easter eggs and doing some boxing. Rory has cerebral palsy and has been fighting from day one so its no surprise to us that he is boxing mad. His wish is to walk and myself & Gerry will do what ever it takes to see our little boys wish come true. Both Rory's hips are currently in difficulty , his right been the worse, its over 52 % dislocated and could come out at any time which is very scary. We have been told that its very likely that this will happen soon as we have no way of containing his hip. When this this happens it will mean that we will have to jump on a plane and get Rory to the states, where Rory will undergo double hip surgeries at Boston Children's hospital. This is something I am now living in constant fear of, as Rory will be in excruciating pain. He is currently waiting on a sleep system from the HSE along with a specially molded night time wedge but we received an email to say Rory is on the waiting list & workshop in CRC is out of action for the month of April so they are unable to make any of the wedges for that period of time. They had informed us that Rory is currently 7th on the wait list & that they envisage once it is back up and running in May that he will be scheduled to have his made towards the end of June, that is all going to plan with their workshop. This is ridiculous & so unfair as Rory needs this last November ! It breaks my heart, they have been neglecting Rory from day one & any piece of equipment which he requires has to be fought for, I waste so much precious time that I could be spending with Rory begging for what he needs, doing emails about emails. They prescribed this last November, they understood that his hips were in serious trouble and yet Rory is still waiting. The HSE are a disgrace in my opinion they told us Rory's right hip was 15 % dislocated when In actual fact it was 52 % ... Its continuing to migrate and is requiring constant monitoring. We need to pay for Rory's surgeries upfront & are desperately trying to raise 122,000 to cover the cost of the surgeries. This figure covers the surgeries alone before logistics of flights, accommodation etc... We need to get this 122,000 into his hospitals account urgently. We have received two emails requesting payment. Its all so worrying. Rory will be in cast for over 6 weeks post op and will require intensive rehabilitation for the foreseeable future, but the surgeons in the USA have told us Rory will walk post surgery. Its going to be a long road and will require lots of hard work and effort from Rory, but he is a wee fighter and he will do it. Rory will require a minimum of 2 years in the neurological rehabilitation center post op. This comes at a cost of 2200 per month plus an additional 660 for physiotherapy. While life is going to be difficult in the short term , long term for Rory it will all be worth it. Carl & Christine have donated a massive €4200 into Rory's fund to help with the cost of Rory's double hip surgeries in Boston Children's hospital, but they didnt stop there, Carl has given Rory some of his sports memorabilia which we hope will raise some of the vital funds required for his surgeries, this includes the jacket worn for the Leo Santa Cruz fight along with a signed glove from Barry Mc Guigan , Shane Mc Guigan and Carl himself. A signed glove by Leo Santa Cruz & Carl, the boots that he wore for the Leo Santa Cruz fight,and the treasured boots from his Scott Quigg fight ..... its just unbelievable !! Carl & Christine are just the most beautiful couple , so down to earth, extremely generous and so positive for our wee Rory's future. I was very down in the dumps down a few months ago but Carl kept me going and made me believe that it is possible & that there are good people willing to help Rory. To have Carl & his lovely family come to spent the day with our Rory was absolute amazing, to see him having fun with his hero was just something else. Carl is an ambassador for little Rory , He is launching wristbands for Rory , these #TeamRory wristbands are only €5 each with the funds going towards Rory's surgeries & giving him the life he deserves They can be ordered @ http://www.rorygallagherswishtowalk.com/wristbands.htm For anyone that would like to purchase any of the memorabilia with the funds going directly towards giving little Rory the life he deserves we would be delighted to be contacted by email @ Rorygallagherswishtowalk.com or on twitter @ Roryswishtowalk If anyone would like to donate to Rory's cause please go to www.gofundme.com/roryswishtowalk www.rorygallagherswishtowalk.com www.rorygallagherswishtowalk.com
Rory and Carl
Source: Shauna Gallagher
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